To maintain our relationships with members and donors, and to keep you informed about our work, we collect some or all of the following information about you:
We collect, use and disclose your personal information to:
We do not sell or share our member and donor lists. Your personal name and address information, including email address, is used by staff that are involved in the distribution of our information and publications. Information related to your donations is used by staff that are involved with fundraising and finances. Historical donation information is provided to staff, board members and volunteers who assist with occasional telethons; volunteers are asked to sign a confidentiality agreement and all information is returned once the telethon is done. Information may be used from time to time to contact you to survey your opinions.
Before using your information for any other purpose, we will explain the purpose and obtain your consent. We will not collect, use or disclose information without your consent, except where authorized by law.
You have the right to access your personal information and request changes, if needed. It is your right to choose not to provide us with some or all of your personal information, or to deny us the use or disclosure of your information for certain purposes. Should you exercise this right, we will not unreasonably withhold requested materials or services.
Our systems and procedures are designed to prevent the loss, misuse, unauthorized access, disclosure, alteration or destruction of your information. We retain your information for as long as needed for our purposes and/or any legal or regulatory requirements.
If you have a question, comment or other request pertaining to privacy, please contact us.